Date of Award
Open Access Thesis
Master of Arts in Nursing (MAN)
Susan K. Nash
Joyce B. Perkins
Persons with intellectual disabilities are living longer lives, often outliving family caregivers, and experiencing chronic illnesses known to the general aging population. Ultimately, this translates to a need for end of life care. Hospice care seeks to provide individualized physical, emotional, and spiritual support to assist persons and their families in attaining the highest quality of life in the face of a life limiting illness. Hospice services have been underutilized for persons with intellectual disabilities and little has been studied about end of life care provided by community based residential caregivers. The purpose of this project is to use Margaret Newman's Theory of Health as Expanding Consciousness and Complexity Science to create a model that supports collaboration between hospice nurses and caregivers giving end of Iife care to persons with intellectual disabilities in community based residential homes.
Gress, Emily K., "Giving end of Life Care to Persons With Intellectual Disabilities: a Model of Support for Community Based Caregivers" (2009). Theses and Graduate Projects. 480.